CHILDREN WITH SPECIAL HEALTH CARE NEEDS*

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Policy:

Medical technology, changes in the healthcare industry, and increased home health capabilities have created a special population of patients that interface with the EMS system. It is important for EMS to understand and provide quality care to children with special health care needs. Such children may include patients with cerebral palsy, multiple sclerosis, traumatic brain injury, etc.

 

The Kids’ Information Data Base Access System for Emergencies, or “KIDBASE” program, is designed to increase preparedness for emergencies by having children with special medical conditions register with the local EMS agency. At the request of the child’s parent or guardian registered KIDBASE children will carry an emergency information form at all times (see Attachment page 1 and Attachment page 2), and copies will be provided to the child’s school and local EMS agency.

 

Purpose:

·         Decrease the time it takes for emergency personnel to get important medical information about medically fragile children.

·         Provide quality patient care and EMS services to children with special health care needs.

·         Understand the need to communicate with the parents and caregivers regarding healthcare needs and devices that EMS may not have experience with.

·         Promote, request, and use the “KIDBASE” form that catalogs the health care problems, needs, and issues of each child with a special healthcare need.

 

Procedure:

1.      Caregivers familiar with the KIDBASE program will tell the 9-1-1 telecommunicator that the emergency involves a “KIDBASE child”. Others may state that this is a special needs child. Ask caregiver for copy of the Emergency Information Form (or “EIF”). In North Carolina, this form is also known as the KIDBASE form.

 

2.      Consider contacting child’s primary care physician.

 

3.      Transport child to an appropriate medical facility. This may involve contacting medical control and the on-duty Operations Supervisor for permission to transport from the scene to an out-of-county hospital.

 

Families that participate in KIDBASE are also encouraged to contact their local ambulance or dispatch agency with information about their child. This provides the agency with an opportunity to become aware of medically fragile children in their area and to plan for disasters or emergencies involving that child. Some agencies even use this information to conduct home visits prior to an actual emergency.